Useful Links

Outcomes results from a recent PILOT initiative were published in CE Measure entitled "Impact of a CME Program on Physician Knowledge about Idiopathic Pulmonary Fibrosis" by Dr. Theodore Bruno from The France Foundation. CE Measure is the first peer-reviewed journal dedicated specifically to the art and science of healthcare educational outcomes measurement. Original manuscripts that address outcomes methodologies, results, practice-based protocols, CE conference highlights and abstracts, and case histories are published to promote vigorous academic scrutiny of this important subject.

Learn more at >> www.cemeasure.com

ClinicalTrials.gov provides information about all federally and privately supported clinical trials conducted in the United States, and around the world. The site describes the purpose of each trial, participation requirements, trial locations, and contact information for more details. Visitors to the site can search for clinical trials by specific medical conditions.

Learn more at >> www.ClinicalTrials.gov

The Coalition for Pulmonary Fibrosis (CPF) is a national nonpartisan organization led by physicians, medical research professionals, patient advocates, and organizations impacted by pulmonary fibrosis. The Mission of The Coalition for Pulmonary Fibrosis is to unify and enrich education, patient support, and research efforts for pulmonary fibrosis, particularly idiopathic pulmonary fibrosis, with the involvement of physicians, patients, researchers, and all individuals who are affected by this disease; and ultimately to find a cure.

Learn more at >> www.coalitionforpf.org

The clinical experts at Inova Advanced Lung Disease and Transplant Program continually seek out and implement the latest treatment techniques. These advancements may delay or forestall the need for a lung transplant or offer treatment options to patients not eligible for transplantation.

Learn more at >> www.inova.org/lung
MedlinePlus® includes information from the US National Library of Medicine (NLM), the National Institutes of Health (NIH), and other government agencies and health-related organizations to help answer specific health questions. MedlinePlus® also provides a search tool, easy access to medical journal articles, extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.

Learn more at >> www.medlineplus.gov

The primary mission of the Pulmonary Fibrosis Foundation is to improve the quality of life of those affected by this terrible disease. Our program funds research into this disorder. Areas of interest are studies in pathogenesis, genetics, and novel therapies. In addition, the Foundation has formed a network aimed at the early and accurate diagnosis of Pulmonary Fibrosis.

Learn more at >> www.pulmonaryfibrosis.org

The Scientific Registry of Transplant Recipients (SRTR) is a national database of statistics related to solid organ transplantation. The registry includes many topics related to transplant activity, including organ donation, waiting list candidates, transplant recipients, and survival statistics. The registry's purpose is to support the development of sound policy, encourage research on issues of importance to the transplant community, and facilitate responsible analysis of transplant programs and organ procurement organizations.

Learn more at >> www.ustransplant.org